Monday, June 24, 2013

when will it end?

June is migraine awareness month so I thought I'd share my story. Well, at least, a brief overview of my journey with migraine at least. This is also published on Migraine.com.

"I don't know where to begin. I have had migraines for as long as I can remember. As a 5 year old, I can recall running to my mom with my head in my hands, crying from the excruciating pain. My mom checked off all the obvious potential problems. Was it just a headache? Was it my eyesight? Was something wrong with my jaw? By the time I was in 2nd grade, I had glasses to correct my nearsightedness and a retainer to correct my slight overbite, but the headaches only continued. When a migraine struck, I would come home from school, lock myself in my room, make it as dark as night, and sleep until the pain subsided. By then, it was clear that I was living with migraine.

As I grew older, my migraines only grew worse. Sometimes, it just wasn't possible to lock myself in a room and sleep for the days at a time. That's when I can remember first vomiting because of a migraine. As if the pain weren't enough, the nausea and vomiting, and sensitivities to light, sound, and smell made my migraines debilitating. Although while growing up, I didn't get migraines chronically they always seemed to show up at the worst time. Migraines have caused me to miss birthday parties to volleyball games to prom. By the time I graduated high school, migraines were just apart of who I was and something I had to overcome.

While in college, I never left the house without medication. I knew at the first sign of an attack I had to take OTC medicine or I was done for. But as I checked off my college years one by one, my migraines only grew worse and it seemed that I was popping pills like candy. Just six months after graduating from college, I had to quit the job I had worked so hard to get because my migraines had become chronic and completely disabling. That day was almost three years, and I still haven't been able to return to work. I'm 26 years old and disabled from chronic migraine disease.

Since the day I left my job, I have been fighting with everything I have to get better, but somehow, I'm losing the battle. I've tried medication after medication, chiropractic care, acupuncture, biofeedback therapy, Botox, nerve blocks, diet changes, the list goes on and on and on. I've seen specialist after specialist and traveled half-way around the country to visit one head pain clinic to the next. I've been hospitalized twice for more than 10 days at a time. Both times, I was pumped full of IV therapy after therapy in hopes of breaking the cycle, but nothing worked. I have migraines not just chronically, but constantly. Additionally, I now also suffer from major depression disorder, gastritis, and hypothyroidism.

Three years ago, I was ready to take on the world. I knew who I was and what I wanted to become. I had hopes and dreams. Now, I spend my days going to appointments, picking up medication, and hoping against all hope that my pain levels won't rise above a 6. Even though I've had migraines for my entire life, I never would have thought it were possible to experience one day in and day out. Intermittent migraine and chronic migraine are truly two different diseases. I used to complain when I migraine derailed an event in my life, but now that migraines have derailed my entire life, I would give anything to go back to how things used to be. Right now, there is no light at the end of my tunnel, but I promise you, I won't stop searching for it."

4 comments:

  1. I've had migraines since I was a small child and they too just kept getting worse. I can't take any meds whatsoever because they ALL trigger migraine attacks. Every single one either OTC or prescription (except ibuprofen but it hardly does anything).

    I finally figured out that it was my liver. I've been living with severe liver damage from when I was a child and I have combination Non-Alcoholic Fatty Liver Disease (NAFLD) and some cirrhosis. Any time I was under even small amounts of stress from diet to food to cigarette smoke I'd end up flat on my back in a dark room desperately trying to sleep it off. And since meds triggered my migraine attacks I couldn't take anything for it.

    The stress eased up for awhile (and the migraines did too) and I wasn't entirely sure why but then in the past few years they've continually gotten worse once more and researching all the side-symptoms (depression insomnia extremely severe ADHD constant fuzzy-headedness collapsed metabolism and even early onset dementia) led me to trying everything I could think of to try to manage it all. However nothing worked.

    All of that kept my list of problems and potential solutions growing until one little thing popped out at me: everything I'd been researching for so long kept revolving at least in part around my liver as being a player in all of it. Problem was focusing on natural fixes for liver damage didn't seem to help much -- and in fact made things much much worse.

    That was actually the key component that pushed me to realize a few things (which I shall explain here in a bit). A.) My liver was severely overloaded with toxins and stress. I've always done my best to reduce the strain from stress junk food and environmental poisons because I knew they were bad for me but there's only so much you can do with staple measures when you're already dealing with a very badly damaged liver. B.) There were a small handful of "healthy" items I was using that were much much nastier than I thought they were. For instance I was using a "natural salt" deodorant that was absolutely full of aluminum and a few other heavy metals which have been linked to a huge number of vicious physical and neurological problems from depression to dementia to liver damage and more. And C.) the reason trying to fix my liver was making everything vastly worse was because I was trying to flush out all the poisons stored in my liver which was too clogged and damaged to properly detoxify all the heavy metals and other toxins meaning they were basically getting dumped into my bloodstream and causing my systemic inflammation issues to immediately flare up really really hard. So instead of stopping my detox regimen once things got bad I started doing a bit of research on how this detoxing thing works and how I could minimize the problems that got worse while I detoxed. Turns out that some prep-work a few hours before you start detoxing for the day vastly reduces the issue.

    So I detoxed myself for several months and my migraines and depression and insomnia and signs of severe neurological damage have all gone WAY down. I'm not feeling great yet because there's still stuff lodged in my tissues that I have to get rid of I'm still dealing with far too much stress (hate my job HATE!) and I still have to allow all the damage that's been done to heal but I'm getting there. I could go into far more detail both about my problems and the steps I took to fix them (which are surprisingly easy though they'll take some getting used to) but I've been typing this for some time now and I have things to do.

    Start researching natural solutions for heavy metal detoxing liver cirrhosis NAFLD liver and colon flushes things to keep in mind to minimize redepositing heavy metals into other tissues as they're being flushed out and ways to minimize the negative effects of detoxing.

    Checking the notification box in case you have further questions.

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  2. Sorry for not using commas above. For some reason it wouldn't let me post the comment while it had commas in it.

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  3. After my visit with a neurogoligst, he suggested I take a pill daily to prevent headaches. I was already taking two different drugs and did not want to add one more....maybe for life.
    I told him what I wanted was to understand why my sister and I suffered from them, while our other six siblings didn't. What is my body lacking or having too much of, that would trigger headaches. I also stated that I wanted to prevent them with natural medication and proper diet and not with more drugs.
    he immediately suggested that vitamin supplements plus the right diet could make the difference.
    I started taking 400mg of B-2. (Riblofavin) Magnesium 200mg and feverfew (natural herb supplement similar to chamomile)
    he did say that it could take 30-60 days before I started feeling some difference, but within a couple of days of starting B-2 and feverfew, I noticed a very positive change.
    I tried the magnesium also, but it did not agree with me, would make me very letargigc and dissy, so he advised not to take that one anymore.
    So I continued with B-2 and feverfew daily with positive results.
    At the same time, I received a list of possible triggers and rearlized that, in addition to have a mineral Rivoflabin (B-2) deficiency, I was consuming various health foods that, in my case, were resulting in triggers: Peanut butter, pecans, walnuts, peanuts, bananas, oranges, tomatoes, yogurt, most cheeses, cured meats, lunch meats, salad dressings, sour cream....etc. etc. It is a long list.
    So you need
    The feverfew supplement is acting as a preventive medication and the
    B-2 helps the brain as well as B-12 complex, which I also take. I also went to acupuncture for 12 weeks and now Im waiting to see if I need to continue with that or stop sessions.
    Results: I have been able to stay away from fioricet (which is very addictive) and resort to Immitrex when I feel a headache coming, but the number of headaches has dropped significantly. I also had 12 sessions of acupuncture and I'm now on a wait and see if I still need acupuncture or not plus I also watch very carefully what I eat.

    Good luck to all

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  4. I forgot to mention the number one triggers: alcohol, chocolate, aspartame, MSG. (a lot of foods contain that) soy sauce, and many many

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